Register as a patient in the TRICALS registry

Taking part in the TRICALS registry as a patient will contribute to important research on ALS/MND. This form is intended to create a new account in the TRICALS registry. The registry serves as a centralized database designed to match patients with upcoming clinical research opportunities.

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Purpose of the TRICALS registry

The purpose of the TRICALS registry is to connect people with Motor Neuron Disease (MND), or Amyotrophic Lateral sclerosis (ALS) interested in clinical trials with MND centres performing them.

What information is collected?

If you decide to register, you will be asked for information about yourself and where you live. Providing this information is voluntary. We will need it to include your details on our TRICALS Registry. To make sure our information is accurate, we will ask you some questions about your condition. We will also ask you to complete a short questionnaire (this takes around 10 minutes) every 3 months to keep us informed about your condition.

Risks

By taking part in the TRICALS registry you are giving us information about yourself that could theoretically be obtained by a third party. To keep this from happening, we will limit who can see your information. We will also have security measures in place that keeps your information safe, including using secure protocols for transmission of data electronically.

Benefits

The purpose of TRICALS is to match those with MND with potential new treatments. Once a new trial starts in a location near you, you'll receive a notification email. Your participation will allow us to design and perform better trials. .

Confidentially

Your information will be kept private to the extent allowed by law. Only authorized individuals will have access to your information. Your information will be stored in a secure location with limited access.

Consent

On the following page, you will be asked to provide your personal and medical information. Your decision to provide the requested information requires your explicit consent. TRICALS may share this information with appropriate TRICALS staff, including administrative and medical staff, and researchers. If you consent, you will help to create the TRICALS Registry and in doing so you will contribute to important research on MND.

Additional information on the TRICALS Registry

To ensure clear communication and manage expectations, it is essential to understand both the capabilities and the limitations of the TRICALS registry.

The registry serves as a centralized database designed to match patients with upcoming clinical research opportunities. However, registration does not guarantee participation in an ALS clinical trial. After completing your registration, you will only be contacted if a new clinical trial initiates within your country or your preferred medical center, and if your profile aligns with the study’s specific criteria.

Furthermore, the registry acts as an active data collection platform rather than a static list. To ensure researchers always have access to the most accurate and up-to-date information, the registry gathers ongoing health measurements. This includes a voluntary three-month follow-up questionnaire. It is always possible to change your preferences at a later stage. if you require any adjustments to your registration or communication settings, please contact us at info@tricals.org.

Interested in which clinical trials are currently taking place in Europe, or view past clinical trials: Go to the Trial overview page