International Network for ALS Research and Care

The International Network for ALS Research and Care (INARC) is a network of nurses, study coordinators and other professionals involved in ALS clinical research or care. The aim of the network is to connect members and to create a platform to exchange skills and expertise.

Become a member

As an INARC member, you will be informed on the network’s activities and get access to workshops, seminars and meetings.

All staff members involved either in the clinical care of ALS patients or in clinical research with ALS patients are invited to become members of INARC. As other networks might be more specific to physicians, INARC focuses on all the other members involved in ALS research and care: nurses, study coordinators, OTs, PTs, SLPs, research nurses, and more!

Being an INARC member is free of charge, allows you to be on our mailing list and receive all the information relevant to the network, but also grants you access to INARC satellite meetings for an accessible price, like the one hosted yearly at the ENCALS meeting. More information about registration for the INARC meeting at ENCALS 2024 can be found at the bottom of this page.

Our goals
  • Connect the different ALS research and care staff members together
  • Organize networking events at global conferences
  • Organize workshops and satellite meetings
  • Streamline the communication between ALS research and care staff members
  • Create a platform and a space to exchange skills and expertise
  • Increase our problem solving skills when facing common challenges in the ALS clinical research field
  • Empower our members and experience-based training
Learn more (brochure)
Upcoming meeting: INARC satellite meeting during ENCALS 2024

INARC is hosting its next face-to-face meeting on 20th of June 2024. This meeting will be held at the ENCALS meeting in Stockholm, Sweden.

Get ready for a full day of INARC satellite meeting (on Thursday 20th of June)! INARC members will be able to register at reduced costs for the ENCALS meeting in Stockholm, allowing them to attend both the ENCALS conference and the INARC satellite meeting. Standard registration fee is €50* and Late registration fee is €60*.

You can register yourself for the INARC satellite meeting via the general ENCALS registration page and choose the INARC registration category. For registration as an INARC member, you need to upload the 2024 registration certificate. This certificate can be requested via

The program for this year’s meeting is centered around End of Life in ALS.

The INARC Organizing Committee is looking forward to see you all in Stockholm!

View the program here

*Please note that the reduced fee is dependent on attending the INARC satellite meeting. Anyone who fails to attend the satellite meeting during ENCALS will be charged the full registration fee.


Organizing Committee

The Organizing Committee consists of the following members.

Tommy Bunte

Tommy acts as a TRICALS trainer for outcome measures, and is also a physician assistant and the director of the ALS clinical trials at the University Medical Centre Utrecht.

Juliette Foucher

Juliette is currently working at the Karolinska University Hospital as an ALS research coordinator, while conducting her PhD at the department of clinical neuroscience of the Karolinska Institute. She is also acting as Nordic patient liaison for TRICALS.

Mathias Couillard

Mathias first joined the clinical research unit of the Neuro in Montreal as an ALS clinical trial coordinator and is now the manager of the unit, overseeing over 100 trials in neurological diseases.

Vanessa Bertone

ALS team-leader, Clinical Research Unit, Montreal, Canada.

Join us and help us create the INARC that you need!