Our privacy policy

TRICALS is a collaboration of scientists and health care professionals from multiple university medical centres in Europe with expertise in ALS, PMA and PLS. The aim of this collaboration is to reach our one goal: find a treatment for ALS within 5 years.

Who is responsible for you personal data?

We are a not-for-profit organisation and our registered address is Stadhouderslaan 10, 3583 JH Utrecht, The Netherlands. We control the personal data that is collected through the website. This means we control the ways your personal data are collected and the purposes for which your personal data are used.

What personal data do we collect about you?

We aim the highest standard for data privacy introduced by GDPR. We may collect, process and use your personal data either through our website (when you subscribe to our newsletter), mailing or through personal contacts.

On the TRICALS website we only collect basic personal data and do not include any special types of information or sensitive data. The personal data may include name, function, work address, email, and phone number. Registration as a patients is done on a seperate platform to ensure maximum safety of your personal patient data.

Why we need your data and what we do with your data?

One of the purposes of our website is to inform you of who we are and what we do.  We only collect and use your personal data for the following on or more purposes:

  • To ensure implementation of our collaboration, as recorded in a proposal, agreement, or contract;
  • For administration purposes;
  • For purposes of the initiative TRICALS
  • To send newsletters and invitations to events

Sharing your data

We do not share your data with third parties for commercial and marketing purposes. Your personal data may be only shared in the context of specific TRICALS activities and collaboration opportunities.

Certain personal information may also be shared with our third-party service providers (such as web hosting, newsletter software provider etc.) only for the purpose of realizing these services. As far as these third parties have access to personal data in order to execute these processing activities, they will be obligated not to use your personal data for any other purposes than that we agreed with you. We request those third parties to implement adequate levels of protection in order to safeguard your personal data.

We may share your personal data with the competent authorities, and only if we are required to do so by law.

How long do we keep your personal data?

We only keep your personal data for as long as is necessary for us to render the service you have requested or to which you given your consent, except where otherwise provide by the law.

What are your rights?

Under GDPR you are entitled to see copies of all personal data held by us and to amend, correct, delete or export such data. You can also limit, restrict or object to the processing of your data. If at any point you want to view your data, or exercise any of the above described rights, you can make a request to:

P.O box 85500
3508 GA Utrecht
The Netherlands

Or by e-mail at info@tricals.org

When you get in touch, we will come back to you as soon as possible and within a maximum of one month. We may ask you to verify your identity before we provide any information to you.

updated nov 2019