We are very excited to announce that recently two new expert ALS Centres have joined our network. The ALS Clinic Lisbon (Portugal) and the Hospital del Mar in Barcelona (Spain) are now officially part of TRICALS. We are looking forward to collaborating with each of them to improve and accelerate clinical trials for ALS.
ALS Clinic Lisbon
The ALS Clinic Lisbon provides multidisciplinary care for people living with ALS patients and collaborates with the Portugese ALS Patients Association. It is supported by the Hospital Clinical Investigation Center in the conduct of clinical trials. Together with the Faculty of Medicine (University of Lisbon) and Institute of Molecular Medicine-JLA (research institute), the centre promotes clinical and translational research. The centre is headed by Professor Mamede de Carvalho.
The ALS Clinic Lisbon regularly follows more than 200 patients from Lisbon and other regions of Portugal. Every year, 50-60 new patients are diagnosed. Since more than 30 years, this centre makes a regular scientific contribution. Besides clinical trials, the centre is interested in the study of clinical characteristics and disease progression, neurophysiology, respiratory evaluation and ventilatory support, biomarkers, genetics, epidemiology, big-data analysis and artificial intelligence, and sensors.
Hospital del Mar
The Hospital del Mar is located in Barcelona, Spain. The ALS/MND Unit of Hospital del Mar is composed of staff from two institutes: the Parc de Salut Mar (hospital from the Spanish health public system) and the Miquel Valls Foundation, a private non-profit catalan entity that is concerned with improving the quality of life of people living with ALS and their families. This association allows an integral and complete care with homogenous and protocolized criteria, simplifies the care process, improves the quality of the service provided and increases the satisfaction of patients and caregivers.
The ALS centre also participates in research projects on ALS and conducts psycho-social research and occupational therapy. They collaborate, foster and support translational research (both clinical and basic research). The three main axes of action of the unit are: assistance, research and continued training of health professionals. The centre is coordinated by Dr Miguel Angel Rubio.
TRICALS is now active in 15 countries throughout Europe. ALS experts from 42 Centres have teamed up with patient organisations, fundraisers and pharmaceutical companies. By uniting our efforts, resources and talents, we will be quicker in realizing our shared ambition: to find effective treatments for ALS.